{"id":439,"date":"2019-08-30T14:53:34","date_gmt":"2019-08-30T20:53:34","guid":{"rendered":"https:\/\/www.leeandkristin.net\/rll\/?p=439"},"modified":"2019-08-30T19:48:54","modified_gmt":"2019-08-31T01:48:54","slug":"what-i-do-season-20-episode-8","status":"publish","type":"post","link":"https:\/\/www.leeandkristin.net\/rll\/?p=439","title":{"rendered":"What I do (Season 20, Episode 8)"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">My wife, Kristin, jokes that whenever someone asks me what I do, her ears perk up, because she likes to hear the latest story. It changes often enough\u2014though I\u2019ve been at the University of Chicago and Argonne National Laboratory for 20 years\u2014that she needs regular updates, and this is how she gets them.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Lately, I\u2019ve had the privilege of working on a project with the <a rel=\"noreferrer noopener\" aria-label=\"National Institutes of Health (opens in a new tab)\" href=\"https:\/\/www.nih.gov\/\" target=\"_blank\">National Institutes of Health<\/a>. It\u2019s a data management project\u2014no surprise there!\u2014and it\u2019s one in a series of projects aimed at getting a handle on the data being produced by NIH\u2019s strategic initiatives.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">NIH is plural: the &#8216;I&#8217; stands for institutes, and there are quite a few of them, mainly housed together on a campus in Bethesda, Maryland. For the most part, each institute has its own programs and projects that focus on specific issues, such as cancer, heart disease, etc. They don&#8217;t often share data, and the data they collect isn&#8217;t particularly re-usable. But there\u2019s also a program called the <a rel=\"noreferrer noopener\" aria-label=\"Common Fund (opens in a new tab)\" href=\"https:\/\/commonfund.nih.gov\/\" target=\"_blank\">Common Fund<\/a>, which sponsors a portfolio of research initiatives, each of which generates considerable data that could be useful in other work.<\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"alignright\"><a href=\"https:\/\/commonfund.nih.gov\/hubmap\" target=\"_blank\" rel=\"noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"223\" src=\"https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-300x223.jpg\" alt=\"Human BioMolecular Atlas Program, NIH Common Fund\" class=\"wp-image-445\"\/><\/a><figcaption><a rel=\"noreferrer noopener\" aria-label=\"Human BioMolecular Atlas Program, NIH Common Fund (opens in a new tab)\" href=\"https:\/\/commonfund.nih.gov\/hubmap\" target=\"_blank\">Human BioMolecular Atlas Program, NIH Common Fund<\/a> (This is not the project I&#8217;m working on, but it&#8217;s very cool.)<\/figcaption><\/figure><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Each Common Fund project focuses on a specific topic. Examples include <a rel=\"noreferrer noopener\" aria-label=\"microbes that live in our bodies (opens in a new tab)\" href=\"https:\/\/hmpdacc.org\/ihmp\/\" target=\"_blank\">cataloging the microbes that live in our bodies<\/a>, the <a rel=\"noreferrer noopener\" aria-label=\"interaction between nerves and organs (opens in a new tab)\" href=\"https:\/\/commonfund.nih.gov\/sparc\" target=\"_blank\">interaction between nerves and organs<\/a>, <a rel=\"noreferrer noopener\" aria-label=\"childhood cancer (opens in a new tab)\" href=\"https:\/\/commonfund.nih.gov\/KidsFirst\" target=\"_blank\">childhood cancer<\/a>, and <a rel=\"noreferrer noopener\" aria-label=\"how chromosomes are organized in cell nuclii (opens in a new tab)\" href=\"https:\/\/commonfund.nih.gov\/4Dnucleome\" target=\"_blank\">how chromosomes are organized in cell nuclii<\/a>. Each of the Common Fund initiatives has a data-gathering component, a sub-team called a Data Coordination Center (DCC), responsible for gathering and managing the data and encouraging its use in research programs. Initiatives last up to ten years and they start and end on a rolling basis, with 12-24 active at a time.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a rel=\"noreferrer noopener\" aria-label=\"The project I\u2019m involved in (opens in a new tab)\" href=\"https:\/\/fair-research.org\/deliverables\/cfde-metadata-ingest.html\" target=\"_blank\">The project I\u2019m involved in<\/a> is to help the research community keep track of\u2014and find new ways to use\u2014the data that\u2019s been gathered by these initiatives. Maintaining awareness of the overall Common Fund data inventory (all the data collected by all the DCCs) is important for at least two reasons. First, it helps ensure the data can be used by appropriate research programs. Second, it helps ensure the resources to maintain the data remain available over time, even when the initiative that produced the data has completed.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">You might think it&#8217;s an easy problem to keep track of this data, but actually it&#8217;s not. More accurately, although it isn&#8217;t hard to remember what <em>kinds<\/em> of data were collected, it turns out to be quite a challenge to remember enough about the data\u2014how it was collected, where it came from, how each measurement was made\u2014for it to be useful in other research projects. There&#8217;s a lot of value in this data, but only if we remember enough about it for it to be reused. Otherwise, it&#8217;s just a very expensive pile of numbers.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The team I belong to is working on a system that allows the Common Fund DCCs to reliably share all the metadata\u2014the all-important details <em>about<\/em> the data\u2014with NIH so it can be remembered after the initiative has concluded. Other important benefits include: helping the DCCs make their data as reusable as possible, and helping medical researchers find data that could be of use in their work.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I feel privileged to be involved in work like this. It&#8217;s projects like these that keep my work at the University of Chicago interesting and worthwhile.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>My wife, Kristin, jokes that whenever someone asks me what I do, her ears perk up, because she likes to hear the latest story. It<span class=\"read-more-link\"><a class=\"read-more\" href=\"https:\/\/www.leeandkristin.net\/rll\/?p=439\">Read More<\/a><\/span><\/p>\n","protected":false},"author":233,"featured_media":445,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_uag_custom_page_level_css":"","footnotes":""},"categories":[3,2,25],"tags":[70,74,71,72],"class_list":["post-439","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-autobiographical","category-computing","category-science","tag-data","tag-medical","tag-nih","tag-work"],"uagb_featured_image_src":{"full":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap.jpg",1157,859,false],"thumbnail":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-150x150.jpg",150,150,true],"medium":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-300x223.jpg",300,223,true],"medium_large":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-768x570.jpg",768,570,true],"large":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-1024x760.jpg",1024,760,true],"1536x1536":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap.jpg",1157,859,false],"2048x2048":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap.jpg",1157,859,false],"miteri-cp-520x400":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-520x400.jpg",520,400,true],"miteri-cp-450x450":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-450x450.jpg",450,450,true],"miteri-cp-700x700":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-700x700.jpg",700,700,true],"miteri-cp-800x500":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-800x500.jpg",800,500,true],"miteri-cp-1200x580":["https:\/\/www.leeandkristin.net\/rll\/wp-content\/uploads\/2019\/08\/20180926-hubmap-1157x580.jpg",1157,580,true]},"uagb_author_info":{"display_name":"Lee Liming","author_link":"https:\/\/www.leeandkristin.net\/rll\/?author=233"},"uagb_comment_info":0,"uagb_excerpt":"My wife, Kristin, jokes that whenever someone asks me what I do, her ears perk up, because she likes to hear the latest story. ItRead More","_links":{"self":[{"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/posts\/439","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/users\/233"}],"replies":[{"embeddable":true,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=439"}],"version-history":[{"count":14,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/posts\/439\/revisions"}],"predecessor-version":[{"id":454,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/posts\/439\/revisions\/454"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=\/wp\/v2\/media\/445"}],"wp:attachment":[{"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=439"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=439"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.leeandkristin.net\/rll\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=439"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}